What doesn’t kill us makes us wish it had

July really just hasn’t been the best month. Mostly it’s been recovery or it’s supposed to be recovery. Yet….. Really it hasn’t been. I started the month out with that fun but non vacation- vacation to California.

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Great grandma, cousins, fair, bow shoot, 13+ hrs car travel with kids, non vacation-vacation

Then birthdays and a sprained back because I’m special like that! Yep. When I overdo it, my body says that’s enough, if I keep overdoing it my body says “I said “bloody fing stop! Or I’ll make you!” and it made me.  Continue reading

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How to survive a migraine with young kids

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Survive is the best you can do when you have a migraine and young children. Since I’ve been a chronic migraineur since I was 16, it’s all I’ve really known. According to my doc, mine are a little different than typical migraines because almost every single migraine I get comes from neck pain. The few others are from drinking too much (aka 3 drinks instead of 2 or less over the course of the entire evening) or going to a concert where it’s loud and usually has flashing lights.

You can avoid all the controllable triggers but there are still plenty of triggers for people like me that are completely out of my control. For example, the weather, my husband’s music and movies, my children, stress, lighting if I have to leave my house etc.

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“Not all migraines Will be full blown, level 9/10. But all migraines can BECOME full blown, level 9/10”. In my experience people without chronic migraines don’t understand the various levels a chronic migraineur will experience migraines at. Some don’t have the throbbing pain, but have every other symptom. Some have the throbbing pain, noise, smell, aura and other sensitivities but can stand some amounts of light. Others yet are there with everything, but as long as it starts quiet, blinds stay closed, you can mostly function normally. And of course, the typical migraine that everyone at least knows of if not have experienced, the kill-me-now-chop-off-my-bloody-fing-head-i-just-want-to-die migraine.

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So how do you survive a full blown migraine with young children and no help?

1: Bring baby with you. Tickle the toes, snuggle and play with their favorite toy usually is enough to keep baby happy and quiet. Plus it lowers your stress of wondering about baby.

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If you can, let in a small amount of light.

2: Unlimited media time. Yes I said it. Unlimited media time. Basically when you have a full blown migraine the only thing you care about is keeping it quiet. If letting your older ones play quietly on the xbox, watch movies, play ABCMouse, whatever, let them do it. Like my doc said after I had a meltdown because I had to let them have too much media time several days in a row, it’s not going to kill them.

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3: Easy meals. When it’s a migraine, good chance you won’t be able to stand for long, let alone cook. Order pizza, heat up a freezer meal, forget the extras. Just make sure when you are back to your normal that you feed them properly.

Any tips or tricks you would add?

Poking my Bruises

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One day this will be my next tattoo

May 12th is fibromyalgia awareness day, so I thought I’d let you know what it’s like to live with fibromyalgia, and what it feels like. I have multiple health problems that all affect each other but I’ll just be focusing on fibro for this post.

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1: You can do anything you want….
You’ll just pay for it later.  This was really hard for me to learn because it was a self taught lesson. I’ve had fibro since I was 16 (possibly earlier but definitely since 16) and despite all the doctors I saw, fibro wasn’t even considered as a possible diagnosis. I was flexible, I did sports (I definitely don’t anymore), I was young. I used to ride dirt bikes, but then that night would be in horrible pain. I would travel and want to die from the pain. I would hike, but once I got to my campsite not be able to move for a day or more. Continue reading

Labor and Delivery with a Spoonie Body – Part 1

Normally I don’t like telling people about my labor and deliveries…. only because I’m not normal. I have a spoonie body that doesn’t react well to labor. That being said, maybe my stories will help a fellow spoonie. I don’t mind sharing my stories, its just that you have to understand that I’m NOT the status quo normal body that does things normally. Continue reading

The Day After

So you have a great day. You feel human. You do what you want to do. Then the day after comes. For most people that might mean a few sore muscles or maybe a little more tired than normal. But for someone with chronic pain the day after and usually the night of is miserable.

Here’s a few tips for surviving the day after:

1. Plan for it. If you know you’re going to have a big day, plan a day or two afterwards to take it easy.

2. Take Your Meds. Take whatever medication you need to get through the day. Don’t feel bad for taking what you need.

3. Sleep or Rest. I find that painsomnia is one of my worst enemies after a big day. I’m exhausted but in so much pain I can’t sleep. So if you can take naps or rest whenever you can.

4. Epsom Salt Bath. A warm bubble bath is wonderful regardless of how you’re feeling, but when you’re in a lot of pain, a warm bath becomes nearly essential. Add a cup of Epsom salt to help with nerve and muscle pain.

5. Pain Cream. I can’t survive without a good pain relieving cream. I prefer natural creams. The local person that I used to buy my cream for had stopped making them. I’m currently looking for a new cream and welcome any recommendations.,

6. Essential Oils. I’m an EO fan. I don’t think they solve every problem but they help me with relaxation and pain management. Diffusing relaxing blends not only smells good, but also helps keep you from tightening up from stress and pain. And topically, there are great oils for pain that I swear by.

7. Drink Water. I know you hear it over and over, but it’s true. We need to be drinking a minimum of 64 oz water a day but as most of us take medicine that dehydrates us, try for more.