How to survive a migraine with young kids

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Survive is the best you can do when you have a migraine and young children. Since I’ve been a chronic migraineur since I was 16, it’s all I’ve really known. According to my doc, mine are a little different than typical migraines because almost every single migraine I get comes from neck pain. The few others are from drinking too much (aka 3 drinks instead of 2 or less over the course of the entire evening) or going to a concert where it’s loud and usually has flashing lights.

You can avoid all the controllable triggers but there are still plenty of triggers for people like me that are completely out of my control. For example, the weather, my husband’s music and movies, my children, stress, lighting if I have to leave my house etc.

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“Not all migraines Will be full blown, level 9/10. But all migraines can BECOME full blown, level 9/10”. In my experience people without chronic migraines don’t understand the various levels a chronic migraineur will experience migraines at. Some don’t have the throbbing pain, but have every other symptom. Some have the throbbing pain, noise, smell, aura and other sensitivities but can stand some amounts of light. Others yet are there with everything, but as long as it starts quiet, blinds stay closed, you can mostly function normally. And of course, the typical migraine that everyone at least knows of if not have experienced, the kill-me-now-chop-off-my-bloody-fing-head-i-just-want-to-die migraine.

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So how do you survive a full blown migraine with young children and no help?

1: Bring baby with you. Tickle the toes, snuggle and play with their favorite toy usually is enough to keep baby happy and quiet. Plus it lowers your stress of wondering about baby.

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If you can, let in a small amount of light.

2: Unlimited media time. Yes I said it. Unlimited media time. Basically when you have a full blown migraine the only thing you care about is keeping it quiet. If letting your older ones play quietly on the xbox, watch movies, play ABCMouse, whatever, let them do it. Like my doc said after I had a meltdown because I had to let them have too much media time several days in a row, it’s not going to kill them.

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3: Easy meals. When it’s a migraine, good chance you won’t be able to stand for long, let alone cook. Order pizza, heat up a freezer meal, forget the extras. Just make sure when you are back to your normal that you feed them properly.

Any tips or tricks you would add?

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Combining Events – Saving Spoons

Birthdays and family days like Father’s day are important to our family, but no so much so that they require grandiose dinners, parties and each to their own special date.

Father’s day comes about a week earlier than Kellan’s bday, which comes 4 days before my husband’s. We combine them. This saves a lot of spoons.

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Continue reading

Panic Attacks and Fingerprints

Panic attacks come in a different shapes, sizes and forms. They’re individual like a fingerprint. Everyone has lines, swoops and swirls, but how they present and affect the person is each to their own.

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It’s hard to put into words what it feels like, but here’s my attempt.

Hard to breathe, like a heavy weight sitting on my on my chest and stomach. It’s like you can’t get enough air, but you don’t want to breathe either.   

Vision and brain activity get static-y. This is one of the hardest ones to explain, but for those of you old enough to remember tv with bunny ears and how whenever there was a storm even the best channels would get fuzzy. Continue reading

My Summer Highlight

6, 3, 3 mo, camping, archery, and fibromyalgia. I must be crazy right?! Maybe a little but it was so incredibly worth every moment.

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In my last post I was freaking out a bit about how much I still needed to get done and didn’t have spoons to do it. I was able to get most of it done after baby fell asleep. And some things simply just didn’t get done, like folding the clean laundry.

Of course we ended up pulling out about an hour later than intended. 3 kids and a husband that needs prompting and my own body refusing to function like I needed it to, it’s what happens. But we got there 3 hrs later and that’s what matters. It was a gorgeous drive through the Columbia Basin Gorge and into the high plains of Oregon.

Continue reading

Spoonie Travel with KIDS

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Our Family Adventures are something we look forward to each month. They are planned to be fun, yet relaxing (which means no in-laws). A day filled with being together, and usually in nature.

This month we chose to go see the tall ships that were docked in Newport, Or. We’ve seen the ships before but this was the first year we learned you could tour the ship for just a donation. Having married a sailor, I knew this was definitely going to be our May adventure.

Traveling with kids however takes a lot of planning. You can’t just hop in the car and go (least not until they’re older). Here’s a few tips to make your next family adventure a little easier. Continue reading

Taking Care of Me

“This is a sponsored post for Self Care Catalysts. I have been compensated through the Chronic Illness Bloggers network. All opinions remain my own and I was in no way influenced by the company.”

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If an outsider were to have been looking through our window on Mother’s Day, I’m sure they would have come away with the conclusion that I was a selfish and unappreciative daughter. Saturday night, I went to my sister’s 30th bday party. That meant I had to be social which is highly draining and seriously tries my social anxiety coping skills. I wore this bangin dress and cute (but not obnoxious) heels…. (I left the 5 in stiletto peep toes at home). Plus this was my first time away from my new baby more than a quick run to the store – add more anxiety. Come Sunday morning, I was in a full Fibro Flare and the minute I walked in the door my mum saw that. To my dad and brother I had to tell them that this was a No-Touch Day. Instead of helping prepare dinner, set the table or help in general, I sat in Papa’s recliner and simply rocked with the baby. Once dinner was ready, we all gathered around the table and Mum took little Findlay from me and put him in his bounce chair which she moved closer to my chair. Other than helping with clearing the plates and prepping the dessert, I didn’t help. I sat in a comfy t shirt, leggings and sweater in my dad’s chair. I recovered. My family was very much okay with that.

We each have to be a little selfish when it comes to our health. Continue reading